Ulcerative Colitis Charter

On 26th November we launched a petition on No 10 Downing St for the colitis charter.
denise whittle
Active member
Posts: 1
Joined: Wed Apr 14, 2010 12:17 am
Date first diagnosed with IBD: 06 Jun 2009

Re: Ulcerative Colitis Charter

Post by denise whittle » Fri Apr 16, 2010 4:12 pm

Id like UC to be more accknowledged as my daughter was diagnosed last june and has, i would say been predjudised by her employers because of the time she had to have off work. No one who isnt affected by this illness realises how dabilitating it can be.I dont suffer from it personally but believe i do go through the suffering and more so the worry of this illness with her.My daughter is 23years old ,was last year in hospital with dehydration and although we have specialists regarding UC i do think local gps are a little ignorant towards this illness. This year my daughter is pregnant , a reasonably good pregnancy when only a minor flare up at the beginning so i find she has been lucky, however i work in maternity and i have seen the after affects aswell as the before.UC is as dabilitating as diabetes , asthma however employers seem to accept these illnesses.Well done fore petitioning Downing Street.



meardonna
Active member
Posts: 1
Joined: Tue Jan 04, 2011 1:04 pm
Date first diagnosed with IBD: 20 Oct 2007
Location: newcastle UK

Re: Ulcerative Colitis Charter

Post by meardonna » Tue Jan 04, 2011 4:24 pm

I was refused incontinence pants by the district nurses, even though I was referred by my gp and consultant. I didn't fit there criteria. Wonder how the charter will effect this in future


donna & Squirt
Diagnosed 2007. severe UC effecting whole of colon. Tried everything!
squirt my stoma born 5th may 2011

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andrewg
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Posts: 14
Joined: Sun Aug 06, 2006 10:52 am
Location: Marlow
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Re: Ulcerative Colitis Charter

Post by andrewg » Tue Mar 13, 2012 11:37 pm

Hi Folks,

FYI - There is now a new petition on -

http://epetitions.direct.gov.uk/petitions/3049

More details on the info page -

http://www.ulcerativecolitis.org.uk/col ... tition.htm


Andrew Garside
Founder
Colitis UK

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