This is a concerned boyfriend writing on behalf of my girlfriend. She battled with bad ulcerative colitis for about two years during which time she required three operations - one to remove the small intestine and get the stoma/bag, one to remove the rectum and then the final reversal to get everything back to normal.
She is feeling really good all the time but is still having major issues at night with regard to bowel movements in her sleep and still has to wear diapers/nappies when she goes to bed. This was to be expected initially but it has gone on far longer than was anticipated. She saw the surgeon yesterday who is referring her to someone to work on some exercises with but says if that doesn't work he might have to go back in and try and see if there's anything wrong again.
Obviously I'm very concerned for her and would really appreciate hearing from anyone that has had similar experiences post-op, and what solutions if any they found to the issue, be they conventional or unconventional. Any input at all would be greatly appreciated.
Are you considering surgery ? Have you had surgery ? Trying to cope with colostomy ? Share your experience with others here.
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