Don't understand symtoms

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dragonfly
Active member
Posts: 2
Joined: Fri Feb 03, 2017 2:11 pm

Don't understand symtoms

Post by dragonfly »

Hi I was diagnosed with ulcerative colitis and diverticulitis a year ago. Since then I have been ill a few times with urgency, a temperature and feeling pretty ill. The GP each time has prescribed anti biotics. I often feel unwell and tired and apparently I have a lowish red blood count. But no treatment for some reason! I feel really alone because when I've really had to attend the surgery nobody ever talks about UC. I was told last time I probably had a virus because I had a temperature. I take 1g of Pentasa twice daily. I am due to see the gastro doctor the end of March. It will be my 3rd visit. In between times I feel rather helpless and misunderstood. I often feel unwell. For some reason I don't understand the kidney stones I've suffered with for years is just ignored. I'm sorry I'm sounding sorry for myself but I feel very alone at the moment. I've been in an on and off flare for a few weeks now. No appetite, tired, urgency but not all day long sometimes tummy ache when I do eat.



Karencraig
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Posts: 1596
Joined: Fri Apr 15, 2011 9:51 am
Location: Rochdale Lancs

Re: Don't understand symtoms

Post by Karencraig »

Sounds like you are very much on your own to deal with your symptoms. Has your hospital got IBD nurses? Write a list of all your questions, and symptoms for your consultant.
Ask what you do if you need treatment/advice inbetween appointments.

Sounds like you need to change GP surgery.


EX UC sufferer,surgery on 1 March 2012!!! Marvin (Stoma) became my life enhancer.

dragonfly
Active member
Posts: 2
Joined: Fri Feb 03, 2017 2:11 pm

Re: Don't understand symtoms

Post by dragonfly »

Thank you for your reply. I have thought about changing surgeries. A bit difficult for me as the village surgery treated my son and his partner with such distain. I think you're right about writing done stuff. I will definitely do that at the next appointment. I think my surgery just gives anti biotics because they don't know what else to do. However it does leave me a bit scared that things could get worse with that treatment. As far as I know my hospital doesn't have specialist nurses I could approach. Next time I visit I'm going to be brave and ask all the questions I need to ask including whether I could approach their department when I'm not sure about things. I think not being brave has led me to hide my condition. I get very anxious so I take the tablets and run! I'm always worried they are going to find other stuff wrong with me. I have had a few scary things health wise happen to me over the last few years.
I know you're right about changing surgeries. I really have to consider that option.



Karencraig
Power poster
Posts: 1596
Joined: Fri Apr 15, 2011 9:51 am
Location: Rochdale Lancs

Re: Don't understand symtoms

Post by Karencraig »

Write down what you want to ask too. Add to the list as you think of them, and then take it with you. Your consultant wont mind, it'll make things easier for him too.


EX UC sufferer,surgery on 1 March 2012!!! Marvin (Stoma) became my life enhancer.

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